Participants’ Perceptions of Ebola Research Report to participants

In 2016, we launched the “Perceptions and moral experiences of research conducted during the West Africa Ebola outbreak” study (the “Perceptions” Study). This study seeks to better understand practical and ethical experiences of research conducted during this public health crisis. To this end, we conducted 108 individual interviews in Guinea, Liberia and Sierra Leone with 3 categories of people: (1) participants in clinical trials and other studies conducted between 2014-6; (2) researchers, and; (3) key research decision makers (e.g.: government representatives, scientific committee members; survivors’ association representatives).